So, anyway, I ran across The Spoon Theory about 2 or 3 years ago in my studying about fibromyalgia. It is THE best story to explain to someone who doesn't have a chronic illness what it is like for those of us who do, particularly those of us with "invisible" chronic illnesses, since we often don't look sick; many times I have felt guilty about having to use my handicapped parking tag, even though getting from the car to the door of the grocery store took a monumental effort a year ago, but because I didn't look sick, people would look at me like I was using the system. It made me tempted to limp to placate their judgments.
The lady who wrote The Spoon Theory has lupus, but the story is pretty much the same for people with things like fibromyalgia or any other chronic illness. In fact, a lot of us with fibro spread this story around and consider ourselves "spoonies". I even put a spoon in a frame on my wall to remind me to slow down and listen to my body (which includes what I put into it, actually, even though that isn't the point of the story). All of this will make more sense after you read the story:
The Spoon Theory
My spoon on the wall
My mom (who has lupus and FM, among other things) and I reference this story all the time. :) We rate our spoons for the day, or let each other know that we don't have many spoons left. I've used it to explain to other people what the fatigue aspect of FM is like.
ReplyDeleteThat's great. People who come to my home ask about the spoon, so it also is a good way to explain The Spoon Theory without pushing it on them- they ask first.
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